The Shohet Family Fund for Ewing Sarcoma Research

Noah was away enjoying his freshman year at University of Michigan when he began having intermittent right knee pain. It was so minor he did not even mention it to his parents at first. Unfortunately, an x-ray done soon after showed an aggressive bone cancer confirmed as Ewing sarcoma following a biopsy. He endured limb salvage surgery and many months of chemotherapy and was completely well until routine scans revealed a relapse 2 years after completion of chemotherapy.  He was determined to live life to the fullest and maintain his amazingly positive attitude while he endured more chemotherapy.  Sadly, 5 years and 10 months from his initial diagnosis, Noah passed away.  

While Ewing sarcoma is the second most common bone cancer, it is still very rare. It is diagnosed in only about 200 adolescents and young adults (AYA) every year in the United States. While the disease can be curable, many have extensive disease at the time of diagnosis or have a relapse after initial treatment which makes curative treatment much more difficult.

Because this is such a rare disease and because it affects the AYA population, funding for research into this disease has been lacking. And yet it is only through research that we will be able to find a cure. We have started this fund to raise money for Ewing sarcoma research so that a cure for this disease can be found. We hope that the research funded through the St. Baldrick’s Foundation will lead to a cure for all the other adolescents and young adults struggling with this disease.