Noah was away enjoying his freshman year at University of Michigan when he began having intermittent right knee pain. It was so minor he did not even mention it to his parents at first. Unfortunately, an x-ray done soon after showed an aggressive bone cancer confirmed as Ewing sarcoma following a biopsy. He endured limb salvage surgery and many months of chemotherapy and was completely well until routine scans revealed a relapse 2 years after completion of chemotherapy. He was determined to live life to the fullest and maintain his amazingly positive attitude while he endured more chemotherapy. Sadly, 5 years and 10 months from his initial diagnosis, Noah passed away.
While Ewing sarcoma is the second most common bone cancer, it is still very rare. It is diagnosed in only about 200 adolescents and young adults (AYA) every year in the United States. While the disease can be curable, many have extensive disease at the time of diagnosis or have a relapse after initial treatment which makes curative treatment much more difficult.
Because this is such a rare disease and because it affects the AYA population, funding for research into this disease has been lacking. And yet it is only through research that we will be able to find a cure. We have started this fund to raise money for Ewing sarcoma research so that a cure for this disease can be found. We hope that the research funded through the St. Baldrick’s Foundation will lead to a cure for all the other adolescents and young adults struggling with this disease.
Donations given to The Shohet Family Fund for Ewing Sarcoma Research have funded a St. Bladrick's Fellow grant for Christopher Kuo M.D., St. Baldrick's Scholar grant for David Libich, Ph.D. and two St. Baldrick’s Research grants for Joseph Ludwig. M.D.
The St. Baldrick's Foundation is guided by a Scientific Advisory Committee, comprised of leading experts in the childhood cancer community, to ensure that every dollar makes the greatest impact for kids with cancer.
These people make us smile - they’re the doers and money-raisers on behalf of The Shohet Family Fund for Ewing Sarcoma Research. They’re shaving their heads, hosting events, starting fundraisers and more to make childhood cancer research possible.
Start your own St. Baldrick’s head-shaving event to raise money on behalf of our Hero Fund! You’ll be paired with a staff member who will walk you through every step of the process, and you’ll have fun knowing you’re doing a great thing for kids with cancer.
Register to shave your head and raise money for our Hero Fund at any St. Baldrick’s event happening around the world! Not finding an event near you? Register as a virtual shavee and shave your head anytime, anywhere.
Head-shaving not your thing? You can start a fundraiser to raise money for our Hero Fund with St. Baldrick’s in a way that interests you! Like biking? Bike a marathon. Like baking? Start a cookie baking fundraiser… You get the picture.
St. Baldrick’s Foundation
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(888) 899‑2253 · sbinfo@stbaldricks.org
The St. Baldrick’s Foundation is a non-profit 501 (c)3 organization, IRS identification number 20-1173824.
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