Honored Kid

Kai D.

Age 4
Kai D. Kid Photo

Location

Long Beach, CA, US

Diagnosis

atypical teratoid/rhabdoid tumor (AT/RT)

Date of Diagnosis

February 2021

Status

In treatment

Treated At

California Protons Cancer Therapy Center Children's Hospital Los Angeles St. Jude Children's Research Hospital Seattle Children's Hospital Rady Children's Hospital San Diego Lucile Packard Children’s Hospital

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My Story

Kai's journey battling brain cancer is a testament to his incredible strength and resilience. Diagnosed at just 7 months old, Kai has undergone numerous treatments and protocols, showing unwavering courage and determination. From surgeries and chemotherapies to radiation and immunotherapy, Kai's story highlights the importance of ongoing research and support. Key milestones in Kai's journey include: Jan 28, 2021: Diagnosed with ATRT at 7 months old after showing signs of severe hydrocephalus. Feb-July 2021: Underwent SYJ07 protocol at St. Jude’s in Tennessee. July 2021: Started MEMMAT protocol at CHLA due to relapse. Nov 25, 2021: Began phase 1 Car T Immunotherapy at Seattle Children's Hospital. Jan 13, 2022: Initiated cannabinoid treatment. Feb 2022: 4th brain surgery and 25 rounds of daily sedated focal proton radiation. Jan 2023 - March 2024: Periods of clear scans, recurrence of tumors, and participation in phase 1 clinical trial Car-T BrainChild 4. May - June 2024: Resumed treatment with IO Topotecan and daily oral chemotherapies after new spot detection in May. Kai turns 4 on July 1, 2024. Please visit keepfightingforkai.com to support Kai and others like him. Your contributions, whether through donating blood products or supporting local charities, can make a meaningful difference. Stand with Kai, because he is love, he is here, and together, we can make a difference. #onelove #KeepFightingForKai #ChildhoodCancerAwareness #StrengthInUnity

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