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My son, Sam, was strong. He was just two when he was diagnosed with a terminal brain cancer called DIPG. He never complained about his physical limitations. He just did his very best every day to run and jump and climb and play. He rode elephants, drove a four-wheeler better than most adults, jumped on trampolines, and built the biggest forts and the tallest book towers. He protected those he loved from monsters and mean people. Even near the end of his life, he protected those of us caring for him. If he would cough or stumble and see the worry in our eyes, he would look at us and say, “I’m ok.” He was nervous being around other children because, “he didn’t want them to get sick.” He was so wise and brave and strong.
Sam was really good at loving me and his dad. Every night before bed he would think up a new way of explaining the depth of his love for us. His analogies usually involved trips to space and the tallest buildings and the largest number he could concoct, like 30,60,50 hundred…which is a LOT by the way. He would kiss me a thousand times if I asked him to and he always needed just one more hug and kiss before we would part.
Near the end, when things were getting difficult for Sam, I knelt before him and asked, “What can I do to make you happy right now?” He looked me in the eye, surprised I had asked, and said, “I am happy, Mom.”