Molly started showing signs of facial paralysis and a head tilt many weeks prior to diagnosis. Our local librarian who knows us well suggested a trip to the doctor. Truthfully, I thought it was nothing. We ended up at the CHOP ER looking for an MRI, but were sent home with meds for lymes disease and Bell's palsy. Molly went to her scheduled overnight camp with no notion of the beast growing inside her. At this point she was feeling tired and nauseous frequently, but it still did not raise any red flags, at least for me. Her pediatrician insisted on a visit with an experienced neurologist once two more weeks passed with no improvement, but the wait is 6 - 12 months. We miraculously got an appointment thanks to a cancellation that led us to get an MRI at CHOP  in Philly.    The nurse assured us we would wait around an hour and receive a call in the next day or two with the results. An hour later we were called back to meet with the Doctor, with tears in his eyes he said there is a lesion in Molly's brain, on the brain stem in the pons. I've never cried so much! This was July 14, 2016.  Our vacation scheduled for July 16 to Maine was cancelled so Molly could undergo a brain biopsy in the most precarious part of the brain. We did not know how dangerous it was ahead of time. I had not googled nothing. I did not know Dr Storm is one of the few pediatric neurosurgeons worldwide able to biopsy the pons safely. He is only one hour from our home. God is good, gracious and always with us. After surgery came 30 days of radiation , steroids , severe nausea, agitation then seizures. Diffuse intrinsic pontine glioma. The worst possible diagnosis. Worse location. No survivors.