Ann & Robert H Lurie Children's Hospital of Chicago
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My Story
Just after turning 2, on April 22, 2014 Abbie was diagnosed with AML. Our lives were turned upside down as we learned just how close we were to loosing Abbie. AML is not the "good leukemia" (how can any cancer be "good"?!?) She would need in patient treatment of high dose chemo, lumbar punctures inserting chemo directly into her central nervous system. Even if she beat the odds and survived the AML, she was at extreme high risk of not surviving the side effects and infections that come along with AML treatment.
Abbie is a spunky, stubborn little girl and because of research done at St. Baldrick's Abbie survived! She is in remission, her hair is back, her love for singing and dancing is shown every day. She is bossy and resilient and I wouldn't have it any other way! She loves every Disney and most of all her brother Zach.
Both Abbie and Zach are my heroes. Cancer doesn't just affect the child; it takes an enormous toll on the entire family. Zach went 6 months with only seeing his mom twice a week. He went to school while wondering if Abbie would come home. He watched her get sick and he stayed strong when she couldn't.
The day Abbie was diagnosed we created a mantra that we say every night. "I am strong, I fight, and I never leave mommy". When I saw how strong Zach had to be as well, we created his mantra, "I am brave, I am a warrior, and I will never leave mommy'.
We are now over a year into remission and cancer still haunts us. Is it going to come back? Will she go into heart or liver failure as a side effect of the chemo? Will she develop typically? Will she be able to have children of her own? Will she survive?? I have experienced PTSD and have become stronger. We are all different since Abbie’s diagnosis.
We are the “lucky “ones. Due to your generosity, and the research done by St. Baldricks, we are a story of hope and success. I only wish that all cancer children are success stories.
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