Honored Kid

Heather Serafin

Heather Serafin Kid Photo

Location

Valparaiso, IN, US

Diagnosis

Brain or spinal cord tumor

Date of Diagnosis

October 2013

Status

Angel

Treated At

Ann & Robert H. Lurie Children's Hospital

Change your kid's logo

My Story

...AND JUST LIKE THAT OUR LIVES WERE CHANGED FOREVER Heather was truly an extraordinary child, devoted to her faith. She enjoyed P90X and Insanity work out DVD’s and she loved Walt Disney World. Last July her and her father completed a 3 mile Mudathalon in Valparaiso. That's her in the picture wearing the big smile and the finisher medal. In September 2013 Heather started complaining of headaches and double vision. Heather never complained about anything. After several visits to the eye doctor we were told she needed an MRI. On October 28, 2013 that MRI turned into the words no parent wants to hear, “Mr. and Mrs. Serafin, Heather has Diffuse Intrinsic Pontine Glioma DIPG, an inoperable brain stem tumor. Heather has 3 months to live if you choose to do nothing. Approximately 9 months if you choose radiation. There are clinical studies…” Those words still echo in my head today. Since that day Heather went through a lot; more than any child should ever have to endure. 33 rounds of radiation paired with chemotherapy twice a day. We used natural supplementation to strengthen her body and we saw miraculous things happen for her such as a 45% reduction in the length of the tumor and 26% reduction in the width of the tumor along with NO BRAIN SWELLING! During this first phase of the clinical study she tried to do her school work and her work out routine but there had to be a great deal of modification because of the changes taking place in her body. This type of cancerous brain tumor affects your motor skills and the current treatments wreck havoc on your body. The school work was more than trying because the tumor had caused her to start seeing double all of the time, you can imagine how tough that is. Part two of the clinical study included two types of chemotherapy and was much harder on her body. For one week per month, on a daily basis, she took the trial chemo in the morning and then in the evening she took the trial chemo and TMZ. This combination proved to be too much for her platelets and she had to stop the clinical study. I think at this point most people would panic and fall into fear but we were and remain a faithful family. Heather was an inspiration to all around her. Her faith, courage, and overcoming attitude blessed many lives around her. Heather became an angel on October 25th, 2015, after a valiant and courageous 2 year battle with DIPG.

The Childhood Cancer Ripple Effect

Help Give Kids a Lifetime

Infants, children, teens and young adults are depending on us to find cures for childhood cancers — and to give survivors long and healthy lives.

Support lifesaving childhood cancer research today.

Photo submission policy

Please read the photo submission policy and accept below.

By submitting a photograph of yourself on www.StBaldricks.org, you agree to the following terms and conditions for submission of your photograph:

We strongly encourage all users to submit a before and after photo, so that donors and fellow participants can easily recognize and relate to one another.

Any photo containing cartoons, comics, celebrities, nudity, pornography, sexually explicit images or any copyrighted image (unless you own the copyright) is not permitted. This is because photos of celebrities and cartoon or comic images are generally copyrighted by the owner.

Uploading images of other people without their permission is also prohibited.

This photo submission policy applies to StBaldricks.org users. The St. Baldrick’s Foundation reserves the right to review all photos and to remove any photo for any reason at our sole discretion. If you see a photo on StBaldricks.org that you believe does not conform to this policy, email to WebQuestions@StBaldricks.org