Our world forever changed on Monday September 26th 2011. We took Erin to have an MRI done due to symptoms we noticed in her walk, her hands and her personality. The MRI identified a Tumor on her brain stem called DIPG (Diffuse Intrinsic Pontine Glioma) . This devistated us. We were immediatly admitted to Cook Children's Hospital in Downtown Fort Worth. The location of this tumor made it inoperable and treatment options were limited. The primary treatment is radiation. Erin did not qualify for many of the availble clinical trials. Less than 10% of DIPG children will live longer than 18 months from diagnosis. Survival is even more rare. Our dear Erin passed away a short 6 and 1/2 months after diagnosis.
DIPG is one of the most resistant of all cancers to treatment; it affects primarily children and with a "dismal" prognosis, alternatives are few. Put together, these obstacles offer researchers a chance to revolutionize cancer research and prevention. It is even suggested that a cure to DIPG might result in a cure for almost every other type of cancer.
Thank you for supporting me and the more than 300,000 kids worldwide who will be diagnosed with cancer this year. By sharing the gifts of your time, talent and money with the St. Baldrick’s Foundation, you're supporting research to give all kids with cancer a better chance for a cure.
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