Honored Kid

Carter H.

Age 13
Carter H. Kid Photo

Location

Auburn, NY, US

Diagnosis

Brain or spinal cord tumor

Date of Diagnosis

June 2013

Status

Carter finished treatment Nov. 25, 2013. His last mri, on March 26, 2014, was clear.

Treated At

Golisano Children's Hospital, Syracuse

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My Story

Thank you for supporting me and the more than 300,000 kids worldwide who will be diagnosed with cancer this year. By sharing the gifts of your time, talent and money with the St. Baldrick’sFoundation, you're supporting research to give all kids with cancer a better chance for a cure. Carter was diagnosed with a brain tumor on May 29, 2013. The next day he had surgeryto remove the tumor, which they did. He recovered amazingly and was released from the hospitaltwo days later On June 4th we got a call from the surgeon..it was cancer..and our lives have never been the same...and never will be. Two weeks later he was having surgery to place hickman port, and g/j tube for feeding, for as anticipated, once he started chemo he stopped eating. The g tube was his nutrition and hydration. Cater did five months of very aggressive chemo. He was very sick, throwing up morning, noon and night for months. He received three stem cell transplants, and got mucisitis five times. Mucisitis are sores that run from your mouth all the way through your intestinal track to ypur rectumand is very painful. He was on heavy pain meds during this time..which he had a bad reaction to twice and the doctors had to swich. Carter has a mri of the brain every three months. His last, on 3/26/14 was clear, thank God. His next one is 6/24/14. Hearing the words "the scan is clear" is undescribable...it is a weight being lifted and relief just rushes over you...unfortunately, it doesn't last long, for thoughts of the next mri are always there...the constant worry never goes away. As of now, Carter is doing well, looks well and growing..he still is not eating, though, and we are six months out of treatment. He relies on his g tube for nutrition and hydration. We thank God for how well Carter is doing, and pray he will start eating. We pray everyday for continuous clear scans. Thank you for all your support

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