Our journey began on May 27th, Memorial Day of this year. David awoke unable to verbalize his thoughts. He was rushed to the Lancaster General ER where a CT scan revealed mass on his brain. He was then airlifted to a Nemours/AI DuPont Children's Hospital where the doctors found the mass was actually blood. Relieved, the doctors informed us to return in a month to insure the bleeding had stopped. The next day, David once again awoke with the same symptoms that prompted his first visit. We rushed back to the ER and again were taken back to the children's hospital. Doctors decided to perform brain surgery to remove the blood clot. The surgery was a success, even though there were still pending biopsy results, the doctor informed us that there was less then a .5 percent chance anything would come back positive. Tuesday, June 4th we were sent home and so happy to finally be there. The following day the doctor called telling us they found cancerous cells from the biopsy. Once again, we returned to the hospital. The next day David had a lumbar puncture performed to remove bone marrow and spinal fluid to be sent out for biopsy. For several days we waited for results from his tests, a diagnosis from the doctors, and a treatment plan. After days of waiting, we were finally allowed to return home. On Wednesday, June 12th David was diagnosed with Histiocytic Sarcoma, a rare cancer, that happened to be in his brain. On June 15th, David was experiencing headaches, stomach pain, and problems with his speech. Upon arrival at the hospital David underwent an MRI and found that the cancer had grown since his previous MRI 10 days prior. We waited to hear from the doctors on his treatment plan, but due to the rarity of the cancer it wasn't until June 21st that his treatment began. A lumbar puncture was performed to remove fluid, and Chemo was injected. David is now undergoing chemo through IV.
Chemo wasn't working and the cancer was still growing each day. Surgery was performed to remove the cancer. This surgery left David without movement of the right side of his body. After that surgery Doctors said all of the tumors were removed and radiation would follow to try to kill the cancer in his spinal fluid. Shortly after radiation a MRI showed that the cancer was still in his brain and growing.
Mom and Dad chose to take David home after the doctors said he only had a few days left. David was cared for at home surrounded by family and friends. He went through six more treatments of radiation, praying that this would work.
David fought and fought. He was so brave and so strong, but nothing could stop this horrible cancer. On August 30th he passed away at home, in the arms of his mother and father. Now we are on a mission to raise awareness of Histiocytic Sarcoma so that one day they can find a cure.
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