Honored Kid

Lily A.

Age 12
Lily A. Kid Photo

Location

Akron, NY, US

Diagnosis

Retinoblastoma

Date of Diagnosis

September 2013

Status

In treatment

Treated At

The Children's Hospital of Philadelphia Women and Children's Hospital of Buffalo Wills Eye Institute

Change your kid's logo

My Story

Lily's retinoblastoma was first noticed early on. She had a "cat eye"/ a shine to her eye that was especially noticeable in photos. You might not always be so fortunate to notice it early on, because even if you "know the glow" your child might not have that symptom. It is best to have all children go through an eye exam at an eye specialist. Probably at least once a year. Even if your child does not have this very rare illness, you can detect other simple problems early on by dilating and checking the eye. In kids and adults. Unfortunately, our concerns about her eye were put off by her first pediatricians (repeatedly). The earlier you take care of it the better-- as it is a VERY treatable disease under those circumstances. Fear not! ((DON'T let anyone dismiss you as a worried parent. If you don't feel right about something, be persistent. Don't just assume the doctor is ALWAYS right...)) By God's hand she is here today. When the eye was finally removed, out of the optic nerve that was cut - there was only 3 micrometers of clean nerve. That's God size. Lily's just living her life. Cancer or no cancer. :) ~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~ Thank you for supporting me and the more than 300,000 kids worldwide who will be diagnosed with cancer this year. By sharing the gifts of your time, talent and money with the St. Baldrick’s Foundation, you're supporting research to give all kids with cancer a better chance for a cure.

The Childhood Cancer Ripple Effect

Who's Honoring Me

Help Give Kids a Lifetime

Infants, children, teens and young adults are depending on us to find cures for childhood cancers — and to give survivors long and healthy lives.

Support lifesaving childhood cancer research today.

Photo submission policy

Please read the photo submission policy and accept below.

By submitting a photograph of yourself on www.StBaldricks.org, you agree to the following terms and conditions for submission of your photograph:

We strongly encourage all users to submit a before and after photo, so that donors and fellow participants can easily recognize and relate to one another.

Any photo containing cartoons, comics, celebrities, nudity, pornography, sexually explicit images or any copyrighted image (unless you own the copyright) is not permitted. This is because photos of celebrities and cartoon or comic images are generally copyrighted by the owner.

Uploading images of other people without their permission is also prohibited.

This photo submission policy applies to StBaldricks.org users. The St. Baldrick’s Foundation reserves the right to review all photos and to remove any photo for any reason at our sole discretion. If you see a photo on StBaldricks.org that you believe does not conform to this policy, email to WebQuestions@StBaldricks.org