Dana-Farber Cancer InstituteBoston Children's HospitalAlbany Medical Center
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My Story
Since Adam was a little baby, he has always been an entertainer. He loves nothing more than making people laugh and smile by being silly. So, we knew something was very wrong when he stopped being happy and smiling all the time. In the fall of 2012, Adam started to consistently complain of his tummy and legs hurting. After many trips to the doctor for the pain, Adam eventually stopped walking and eating. An ultrasound of his abdomen was ordered, which showed a large tumor on his right adrenal gland. After a biopsy of the tumor, Adam was diagnosed with stage IV Neuroblastoma. In addition to the large tumor, the cancer had spread throughout a large portion of his bones.
Adam endured 8 rounds of chemotherapy, a surgery for tumor resection and removal of his right adrenal gland, MIBG therapy, stem cell transplant, 12 rounds of radiation, 6 rounds of antibody therapy. Throughout the 16 months of intensive treatment, Adam spent a lot of time withdrawn from the world. He did not feel well enough to play with friends, he was in too much pain, and much of the time he was too immune compromised to leave the house. He was most often seen in the past year with headphones on, watching videos.
Now that he is nearing the end of his treatment protocol he is feeling like his old self again. The headphones are mostly off now! He is happy. He plays like a normal kid. He goes to school and has friends. He dances and sings and constantly makes his family laugh and smile!
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