Ella was diagnosed with NF1 in May of 2011. We were on a waiting game for over a year with MRI's every three months watching the tumors in her brain as they started off growing slowly and then significantly. She started treatment on December 6th and stays strong thru every stick, sedation, treatment, loss of hair, tired day, nauseous moment by helping others and staying positive. Her NF1 effects her in many ways like vision loss, ADHD, poor coordination, low muscle tone and brain tumors. However, she doesn't let any of that stop her. She wants to be an Author (and has written her own book already-just needs it published), Chef, Superstar, illustrator and Vet. She wants to continue the research efforts on NF, help other kids losing their hair by making headbands/hats and help feed/show love to the homeless. She wants to start a support group where families with NF can get together monthly and play/talk, etc. while they share their struggles and successes. Ella is a true inspiration...