This is Rayleigh and she was born with WAGR 11pDeletion Syndrome, a very rare genetic condition that affects several different areas of her development. With this syndrome, she has had to get scans every 3 months since she was born to check for Wilms tumor because she had a 50% chance of developing it. At age 1 1/2, they found cyst like spots on both of her kidneys but they were stable and unchanging until about 6 months ago. In April of 2012 her doctors felt it was best to begin chemo treatment for Wilms tumor as one of the spots has consistently grown. So she is currently undergoing a 19 week treatment plan and possible surgery after 6 weeks.
Rayleigh is a beautiful, happy girl who everyone adores, she loves music and singing and makes us laugh everyday. She enjoys going to school, being outside, eating ice cream and playing with her big sister...we are truly blessed to have her in our lives! She is our 'Ray' of sunshine!
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