2015 UPDATE - Ben is a thriving seven year old. He is in the second grade and excels a reasoning. He is playful and friendly, and EXTREMELY energetic. Ben loves to visit the neighbors, to run and play with friends, and is especially a tech junkie. His favorite activity this year in school is the Lego Club. We feel extremely blessed that Ben has not had a recurrence of his cancer since the original diagnosis.
ORIGINAL 2009 ENTRY - Ben is a happy, active two-year-old. Other than the bald spot on the front of his head you would never know he is fighting a deadly cancer. No matter who he has interacted with through this wild adventure, Ben has been full of light. He seems to know just the right time to run up to a nurse and give them a big hug, or how to give just the right smile through the window to a passer-by when he was in isolation.
Ben had an ATRT (Atypical Teritoid Rhabdoid Tumor) tumor. This is a very aggressive form of brain cancer. Last February, about this time we noticed that his left eye crossed. On February 23rd he went to the eye doctor, then to PICU that night, then left the next morning for Seattle and Houston for brain surgery, chemo, radiation, and in August came home to Anchorage and is under observation. The odds are not strong, but we are living the miracle and hope to have Ben with us for a long, long time . . .
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