We celebrated the 5th anniversary of Sophia's life-saving bone marrow transplant Christmas eve of 2013. It had been a long journey towards that 5th year mark, a very important landmark for cancer survivors. There were bumps along the way, but with the same determination and resilience she exhibited during her treatment at Seattle Children's, she worked herself to the routine of returning to a life of normalcy.
Well, as normal as she possibly can be. A child who faces mortality at such a young age is changed forever. She came out of treatment more mature, and a with a better understanding of what things are more important and valuable.
Looking at her now, you wouldn't think that Sophia was diagnosed with acute mylogenous leukemia (AML), and have no idea of what she had to go through to be here today. Like every child who undergoes treatment for cancer she still has medical issues. The enamel on her teeth are weaker and more prone to decay. She has to deal with growth issues resulting from very potent and harsh chemo, and also a thyroid gland that doesn't work as well as it should. She also has to have her heart and bones checked regularly.
But all those issues are forgotten when she takes the field to play soccer, her favorite sport. It is a joy to watch kids having fun and just being kids. For Sophia that wouldn't have been possible without the money spent on research. Research provided her doctors with the knowledge of how to best deal with her type of cancer; knowledge that will make a difference for other kids and give them a childhood to enjoy.
**Update**
September 28, 2017, after almost a week of having a fever and colds, and missing school for 4 days, we brought Sophia to the doctor. Several tests were done-strep, mono, and flu, and all came back negative. The doctor ordered a CBC and before 3:00 pm, Sophia and her dad were at Seattle Children's Emergency Room.
More tests were done and then they confirmed that the Cancer is back.
The Childhood Cancer Ripple Effect
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Infants, children, teens and young adults are depending on us to find cures for childhood cancers — and to give survivors long and healthy lives.
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