Honored Kid

Emily R.

Age 26
Emily R. Kid Photo

Location

Bristow, VA, US

Diagnosis

Brain or spinal cord tumor

Date of Diagnosis

July 2008

Status

Cancer-free

Treated At

Children's National Medical Center and Children’s National Research Institute (CNRI) Johns Hopkins Children's Center

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My Story

Hi! I'm Emily. I was diagnosed with Medulloblastoma in July 2008. I had surgery, radiation, and chemotherapy and successfully completed treatment in April 2009. I suffered from a severe form of posterior fossa syndrome as a result of the surgery...I participate in speech therapy, occupational therapy, and physical therapy to regain my independence. I am able to walk more than 100 feet independently now and am looking forward to increased mobility over the next year. I am currently off-treatment, and tumor free! 
I am happy to say that, as of July 2016, I am 8 years post-diagnosis and graduated Summa Cum Laude from high school!! I don't have too much free time, but when I do, I like to spend time with my family, boyfriend, and friends, volunteering, advocating, reading, listening to music, participating in theatre, watching anime, gaming, and going to renaissance faires, comic conventions, and anime conventions. I recently made a video for my friends, documenting the first 5 years of my journey: A Life Interrupted: Finding My Voice https://vimeo.com/88843694 I've also recently launched my public Facebook page so I can have a more active voice in awareness: https://www.facebook.com/AVoiceofMyOwn

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