Honored Kid

Callum S.

Age 3
Callum S. Kid Photo

Location

Canton, OH, US

Diagnosis

Ewing sarcoma

Date of Diagnosis

October 2023

Status

In treatment

Treated At

Akron Children's Hospital

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My Story

In September of 2023 my husband and I noticed a mass on Callums shoulder that seemed to appear overnight. It did not hurt or cause mobility issues and he did not experience any sick symptoms. His doctors were not immediately concerned but as his parents we pushed for answers. We had an xray done and they immediately sent us for ultra sound. Within a few hours we received a call stating it was recommended to remove and biopsy and be sent for staging. The worst words you can ever hear about your 2 year old. We had his surgery on 10/4 to remove his tumor from his shoulder. It was sent to lab to confirm what type of cancer he had. On 10/10 we got a call that confirmed Ewing Sarcoma and had our first appointment with oncology on 10/13. 5 days later he had another surgery to place his med port, had bone marrow biopsies and a few days after had full body scans. We started chemo on 10/23. Now at almost 6 months Callum has gone through 2 surgeries, received 13 rounds of chemo throughout 9 cycles and spent over 80 days in the hospital for treatments or illness. We have 13 more rounds over 8 cycles to complete before final scans. We have battled norovirus, C Diff, Coloitis and chronic neutropenia, he has received multiple blood and platelet transfusions and had 15+ NG tube placements. Ewing Sarcoma is a very rare bone and soft tissue cancer, only approx 200 cases a year, that has minimal research and an ever changing treatment regimen. Unlike other sarcomas there is no understanding as to why it occurs. It’s a random genetic mutation but has no links to chemical exposure or proof of being hereditary. Thank you for supporting me and the more than 300,000 kids worldwide who will be diagnosed with cancer this year. By sharing the gifts of your time, talent and money with the St. Baldrick’s Foundation, you're supporting research to give all kids with cancer a better chance for a cure.

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