Honored Kid

Jackson S.

Age 8
Jackson S. Kid Photo

Location

Cheyenne, WY, US

Diagnosis

Rhabdomyosarcoma

Date of Diagnosis

July 2017

Status

No evidence of disease

Treated At

Children's Hospital Colorado

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My Story

Just after Jackson’s first birthday, mom found a lump, in his scrotum. After watching it for a little bit, to see if it would go away or signs or change, she made a call to the pediatrician. They immediately referred Jackson down to Childrens Hospital Colorado, to see urology, for an ultra sound. The urologist we saw, was fairly certain about what we were dealing with, so he scheduled Jackson for a tumor resection and orchiectomy, which removed the testicle and spermatic cord. They biopsied it and the results came back in less than 24 hours. Paratesticular Embryonal Rhabdomyosarcoma with Diffuse Anaplasia. He was immediately scheduled for a full body CT scan, MRI of the abdomen and pelvis, port placement and bilateral bone marrow aspiration. He was referred to the solid tumor team and we began chemo as soon as the oncologist got back into clinic. We were very fortunate to find the cancer so early, but because the tumor contained diffuse anaplasia, the team reached out to St Jude’s, to double check the treatment plan. All was a go, for 6 months of weekly chemo infusions. The chemo that Jackson received was archaic, dating back to the 1950’s and created for adult use. He has suffered neuropathy, which caused drop foot, which he is still in physical therapy for, and damage to his bladder, causing urgency and incontinence. After Jackson’s next follow up appointment, he will also be followed by the long term survivorship clinic, who does full evaluations regarding long term side effects of the treatment he was on, to include cardiac problems and secondary cancers. His journey will never come to an end, but every day, we can breathe a little easier. Thank you for supporting me and the more than 300,000 kids worldwide who will be diagnosed with cancer this year. By sharing the gifts of your time, talent and money with the St. Baldrick’s Foundation, you're supporting research to give all kids with cancer a better chance for a cure.

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