Honored Kid

Lucy S.

Age 9

Location

Naperville, IL, US

Diagnosis

Brain or spinal cord tumor

Date of Diagnosis

December 2015

Status

In treatment

Treated At

Ann & Robert H. Lurie Children's Hospital

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My Story

Thank you to the people like you who read, shave, donate, and share you stories – it is a positive resource in tough time. This website is a community where we can see how many other families have gone through similar struggles and overcome them in one way or another.

I should share a little of what Lucy has overcome. Lucy lives with an optic glioma brain tumor. Two months after the biopsy and diagnosis the tumor changed drastically requiring placement of a central line, 58 weeks of chemotherapy, and feeding her through a G tube. She has lost her vision, had brain surgery, seizures, lots of medication, weeks of hospital stays, countless “sticks”, CT scans and clinic visits, and ongoing therapies.

Lucy is currently in a clinical drug trial made to target and inhibit the proteins that her tumor feeds off. She has a G tube again and is working on bulking up. She takes the bus to preschool and loves her teachers and classmates. Her favorite things are sausage pizza, Luke Bryan, and her family. Anytime we have needed any strength throughout this, we just look to Lucy. If you ask “Lucy, how are you doing?” her response is “Good and happy.”

Thank you again for taking the time to read this, and contribute your time and any money to help Lucy and the kids like her.

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