Children's of AlabamaChildren's Medical Center of Augusta
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My Story
On April 10, 2015, after battling months of nonstop headaches and losing peripheral vision in her right eye, Kelsie (then 13) underwent surgery to remove an egg sized Glioblastoma from her left occipital lobe. After recovering from surgery she went through 30 days of radiation and chemo, followed by a year long course of chemotherapy. Kelsie thrived during the time after treatment. She was actively involved in her school, community and church. She participated as a cheerleader and majorette for her high school, was involved in missions, and loved music and singing. Kelsie went 18 months off therapy with no evidence of disease. On January 14, 2018 Kelsie had a seizure. Her first seizure ever since her diagnosis in 2015. A scan revealed multiple, inoperable, recurrent tumors. She started the HSV G207 clinical trial with Dr Gregory Friedman at Children’s of Alabama. That was followed by a new chemotherapy as well as another 25 rounds of radiation, these treatments caused a positive response, but not enough to keep up with the aggressive nature of her disease. By this time Kelsie was feeling the effects of the disease and the treatment. A speech deficit, and loss of mobility on her right side are just two of the many difficulties she experienced as a result of this terrible disease. After 10 months it was decided that our last hope was a clinical trial in Georgia headed by Dr Theodore Johnson. After a few weeks on the trial the disease proved to be too aggressive for anything anyone had to offer. After a hard fought, battle, after living a life full of faith, hope, and unimaginable courage, Kelsie, one of the great loves of our lives, gained her eternal reward. She impacted everyone she ever met, and our lives are better for having known her. Her light continues to shine even in her absence. Cancer can take many things from us, but it can never take the love and the legacy our loved ones leave behind.
The Childhood Cancer Ripple Effect
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