4 years ago Connor was diagnosed with an Intrinsic Cervicomedullary Glioma. This is an inoperable brainstem tumor. We were told to go home and love him. They gave him under a year to live. I never thought my baby would go to school, have friends, play sports and be a regular crazy boy. A part of me died that day... St.Jude gave us hope. They showed us light at the end of a very dark tunnel. Here we are 4 years later. Connor's tumor is considered stable at this point. He struggles with sleep apnea, scoliosis, severe sinus issues but he is thriving. We have to travel to St.Jude for scans. We go to utah multiple times a year for appointments and procedures but we will always keep fighting. He is in kindergarten, almost a jr. black belt in martial arts and is a total daredevil. He has a smile that will brighten any room and is a complete jokester. Our family now focuses on experiences. Trying to show him all the things life can offer. The future is still unknown. We live life in 6 months increments between scans. His tumor is stable which is the best news we can get. Our family is forever grateful for the hope St.Jude and organizations like St.Baldricks have given our family. It is with the funding for critical research that kids like my son can survive even when the odds are against them. Thank you for listening to our story