In the three weeks leading up to Christmas 2012, Emily was suffering from debilitating headaches. She was sleeping most of the time and was very lethargic when awake. We had taken her to her pediatrician three times and were told it was just a severe sinus infection. The day after Christmas, we couldn't get Emily out of bed. She was crying because her head hurt so bad. We decided to take her to the ER at Greenville Children's Hospital. The resident insisted on Emily having a CT scan. After the scan, as a nurse, I knew when three doctors and three nurses walked into the tiny exam room that the news wasn't good. They had found a tumor in the cerebellar area of the brain. She was scheduled for surgery the next morning. The surgery went well and all of the tumor was removed. We were given a diagnosis of anaplastic medulloblastoma with no metastasis, (M0). Emily underwent 31 combined radiation and chemotherapy treatments and then six twenty-eight day cycles where she received different inpatient chemotherapy drugs the first three days of each cycle. After finishing intravenous chemotherapy treatment, she was on an additional six month treatment regimen using Accutane as an experimental drug to kill any remaining cancer cells. Emily has been NED since the day after her surgery. Currently she undergoes MRI's every 6 months. If her next MRI shows NED she will go to yearly until she is approximately 10 years out. I know that God has healed Emily and we give Him all the glory for his abundant blessings on Emily and our family. God is good ALL the time and ALL the time, God is good!
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