University of MichiganC.S. Mott Children’s Hospital
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My Story
Derek has a rare bone marrow failure disorder that is congenital from birth. Many of these children all go into AML or MDS. They cannot undergo chemo or radiation until time for a bone marrow transplant (only cure) because neither has any affect. It just comes right back. We have been fighting this disease since Derek's was 2 days old. Each day is a new adventure for us. Kostmann's is a very rare disorder, but a form of SCN and can come in many different forms. Many children die before they are ever diagnosed as it's extremely difficult to get a diagnosis.
Together, we stand in a united front against AML, MDS and all childhood cancers and those like Derek who have lost the battle. Samantha Womack, passed away December 23rd, 2010 from the SDS/AML form of this deadly disease. So, too, have many others fallen to its fate and earned their wings. Please join us in the fight to save the lives of every child! Thank you.
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